Showing posts with label lived experience bipolar recovery. Show all posts
Showing posts with label lived experience bipolar recovery. Show all posts

Tuesday, May 12, 2026

When Worry Doesn’t Stop: Let's Talk about Generalized Anxiety Disorder and Its Overlap with Bipolar Disorder - Part 1

 

When Worry Doesn’t Stop: Let's Talk about Generalized Anxiety Disorder and Its Overlap with Bipolar Disorder - Part 1 of 5

Anxiety: The Worry That Lingers

I remember the exact moment anxiety entered my life. It was brought on by abject terror.

As a child, I had anxious moments when the anxiety-driven voices in my mind became so loud that I would have to shake my head a few times to quiet the noise. It felt normal, even manageable, until one spring afternoon outside my sixth-grade classroom when anxiety attacked me out of the blue.

To my recollection, here’s what happened.

The Day the River Threatened to Pull Me Under

It was the final few months of grade six, and everything seemed normal. We had just finished recess, and the playground was its usual discord of harshness, where bullies moved from group to group unleashing their cruel brand of humour on any kid who would listen, and especially on any kid they knew it would affect.

There was one boy in particular they reserved the worst of their venom for. That day, the boy, whom we can call Christopher, simply couldn’t take it. He let out a giant scream that echoed across the playground. Every kid stopped and turned to see where it was coming from.

It was coming from Christopher.

It’s still unclear how I got involved, but knowing me, I was always a champion of the underdog and went to his defence. I had a fixer personality even when I was young. Christopher did not seem to want me to fix things. I remember the angry look directed at me before he stomped off inside the school.

That afternoon, as I walked to my backpack cubby to get my notebook, I found a threatening letter instead. It read, “This will be you in five days,” with a disturbing drawing meant to frighten me.

That was the moment my mind began to race with thoughts of danger and death. My breathing became shallow, my vision blurred, and I collapsed on the hallway floor with the letter in my hand as my world fell off its axis and spun out of control. I remember my fingers going numb and taking on a distorted shape that can only be explained by the lack of oxygen moving through my body. My lungs felt as if they had stopped working, constricted in my chest, until eventually I could feel only the last shallow breaths I took before I fainted.

That is how my teachers and classmates found me. The ambulance and police were called once they realized what had put me in that condition. My vitals were checked, and I was given oxygen, although I still felt like I couldn’t breathe. My parents were called to take me home for the day to rest after my traumatic ordeal. It was promised to my family that the police would investigate and “get to the bottom of this.”

For the next two days, I stayed home from school. When I got home, my mother put me straight to bed, and that was when the anxiety and fear entered my sleep. I tried to rest but got very few hours, waking from nightmares of red walls and ropes tangling around me, squeezing the air out of me. My anxiety manifested as screams in the middle of the night. Screams that took my breath away. My stomach refused to hold down any meal, no matter how small. My head throbbed with agony, like a hammer beating against my brain, repeating the same rhythm over and over: “three more days until you die.”

My parents, being strict about school attendance, refused to let me stay home for the entire five days. So, on day four, I returned to school. I couldn’t concentrate. I sat at my desk in a state of hypervigilance. Sounds were too loud, lights were too bright, and my thoughts continued to spin out of control.

By day five, what I believed would be the final day of my life, I was a ball of anxious energy, no longer my cheerful, outgoing self. On that day, however, it was discovered by police and staff, after comparing handwriting samples from each student, that the culprit was Christopher. My parents were called in and told that he had behavioural problems at other schools and would be expelled as punishment for what he had done.

The punishment for me would be the beginning of a mental health condition I did not yet understand. I had no name for it, but I would experience it daily, living from anxiety attack to anxiety attack.

This blog is a reflection on my lived experience with anxiety. I will discuss living with both Bipolar disorder and Generalized Anxiety Disorder, also known as GAD, the challenges I have faced while trying to balance co-occurring disorders, and how changing my mindset helped me create a space where anxiety could exist.

This is the worry that lingers.

Some worry does not end. Instead, it loops, deepens, and stays.

When Anxiety Persists: A Bipolar Woman’s Reflection

After that incident, I started calling anxiety “the voices.” Throughout my adolescence, I would worry about anything and everything. I created scenarios in my head of negative events that were not actually happening and might never happen, but to my fragile mind, each scenario held some truth.

From the day I found that letter in my backpack, I lived in fear that something just as terrible would happen to me again. The sad part was that even my 11-year-old self knew it would be a hard road between me and regaining my peace of mind.

What I know now, that I did not know then, was that I would experience a series of life-changing events until one day I found myself in a child psychologist’s office being diagnosed with depression and a mild anxiety disorder. Mild anxiety would later develop into Generalized Anxiety Disorder as I got older and continued to struggle with processing painful experiences in a healthy way.

There is a difference between everyday concern and persistent anxiety. Persistent anxiety does not simply affect your thoughts. It also affects your perception of the world, your self-perception, your self-esteem, and your self-worth. Anxiety can even shape your behaviour.

It is not just persistent. Sometimes the worry that comes with anxiety is all-consuming.

Anxiety during a Bipolar manic episode is something I can only describe as loud and chaotic. Because one of the symptoms of mania is disorganized thinking, anxiety in mania can take on a disorganized, even paranoid form. In my experience, when Bipolar disorder occurs alongside anxiety, it can feel as if the extreme worry itself triggers hypomania, the precursor to mania.

When your body is in a constant state of fight, flight, or freeze because anxious thoughts persist day after day, your mind starts to break down. If you live with another mental health condition like Bipolar disorder, that internal pressure can increase the risk of a serious mood episode.

What Generalized Anxiety Disorder Feels Like: A Lived Experience Perspective

I moved to Toronto, Ontario at 33 years old to start working in the event management industry. I was fresh out of school when I was hired by a boutique events company where the staff consisted of myself, my boss, and another woman.

At first, things went well. I was securing big accounts, much to the excitement of my boss. Then one day, there was a notable shift between myself and my co-worker. She seemed to begin a passive-aggressive campaign to undermine my work and shake my confidence. She told me that if I did not find a way to bring in more clients, my boss would be forced to fire me.

That was the moment my anxious mind took control of my rational brain.

When you have Generalized Anxiety Disorder, unless you are experiencing visible physical symptoms or an anxiety attack, people cannot see the internal war you are fighting with your own thoughts. The moment I perceived that I could be terminated, I believed I was already terminated. The worry became persistent, excessive, and all-consuming.

I couldn’t eat or sleep because I was constantly thinking about being fired. Questions raced through my head one after another:

“When am I going to get fired?”

“What is my boss going to say to me?”

“How much time do I have left?”

“Should I start looking for another job?”

“Should I quit before he has a chance to fire me?”

“Should I just work harder to get the big accounts?”

“If I get the big accounts, will he still fire me?”

“Fired, fired, fired. You are going to get fired.”

With every thought came another and another. The thoughts, or voices, invaded my mind at work, and my performance declined. I started taking two and three days off so I could try to catch up on the sleep I was lacking, but also so I could isolate myself, untangle the anxious thoughts in my mind, and come up with a plan to keep my job.

I could not see how illogical I was being. Based on one person’s thoughtless comment, I was spiralling out of control.

I began to see danger around every corner, as if the world was not meant for me, as if I was not enough. There was nowhere I felt safe or secure, not at home and not at work. I eventually did get fired from that job, but I cannot blame my co-worker. She planted the seed, and I watered it with anxiety until the thoughts overwhelmed me.

Anxiety can feel like your mind is always preparing for something that has not happened. When something does happen, like me getting fired, anxiety can become deliberate, telling you your thoughts were right and that you have every reason to constantly worry.

Bipolar Disorder and Anxiety: When They Overlap

Trigger Warning: The below section discusses suicidal thoughts in a non-graphic way.

When you have a co-occurring condition like Bipolar 1 disorder and Generalized Anxiety Disorder, the emotional complexity can present as constant mental confusion and chaos. When you are in crisis, it is hard to tell where your thoughts end and anxiety begins.

During my depressive cycles, anxiety and the intrusive thoughts that come with it have sometimes deepened my distress and contributed to dangerous thoughts about my own life. For me, those moments often begin through the lens of anxious thinking, negative self-perception, diminished self-worth, and lowered self-esteem.

When depression shifts into hypomania, mania, or psychosis, my anxiety moves into that same realm of dysregulation and can take on a voice of illogical fear, paranoia, and emotional instability.

Anxiety has always felt different depending on my internal state. During remission or baseline periods, I have a firmer grip on my thoughts, and I can recognize more clearly when anxiety is trying to overtake me. I use tools like breathing exercises, meditation, and positive self-talk to calm the waves of anxiety that pass through me, attempting to pull me under into a dark place where my life has no value beyond what my anxiety dictates.

During episodes, however, it has always been difficult to distinguish mood shifts from anxiety symptoms. It becomes a constant question: which came first, the shifts or the symptoms?

When I reflect on my past experiences with Bipolar 1 disorder and GAD, I come to the conclusion that although Bipolar 1 disorder is my primary condition, Generalized Anxiety Disorder often acts as a trigger and causes my moods to shift.

For example, although I experience anxiety throughout the day, at night the voices often become louder and more persistent, disrupting my sleep. When I have insomnia for days at a time, when my thoughts will not quiet and prescribed medication does not have the desired effect, lack of sleep can lead to elevated mood and eventually mania.

Anxiety does not always stand alone. It often moves through mood states differently.

Living With Both: Emotional Weight and Exhaustion

There is an emotional fatigue that happens when living with overlapping mental health conditions, especially when each has its own dialogue inside your head. You become constantly alert, fearing relapse and living with uncertainty.

My past experiences with both conditions often creep into my present-day anxieties, especially when my mood shifts from elevated to low, or from low to elevated. The emotional weight and exhaustion of living with both Bipolar disorder and Generalized Anxiety Disorder can be overwhelming at times.

Then I remind myself that my mood disorder and GAD are both part of the lived experience that has shaped who I am today, both good and bad. Managing more than one internal experience can make even calm moments complex, but the calm moments, though rare, do exist.

At present, I practice self-awareness. When possible, I do not allow the voices inside my head to lead me. Instead, I show myself compassionate grace and remember that with inner strength and time, the voices can move from a loud roar to a dull silence.

I still hear and feel my anxiety when it creeps in, but with the self-care tools I have acquired, the emotional weight and exhaustion of living with anxiety has become less and less. It is not about ignoring my inner dialogue. It is about making space for it inside my head, a space where I can choose to listen to the anxious roar or turn it down to a dull silence I have learned to live beside.

Final Thoughts

Finding a Name for the Worry, Reclaiming Peace

Many years ago, the writer inside me decided to take control of the narratives in my head, the voices in my mind that I called anxiety. I realized one day, as I listened to the worry, that it often came in the form of a storyline. There would be one worrisome thought, and then that thought would build upon itself, creating a full story of anxiety.

Calling my worry one of the storylines in my head helped me untangle whether it was fiction or non-fiction, real or imagined. Although this has never been the solution to my anxiety, it was definitely a turning point in how I experienced it.

This new awareness created a space of understanding rather than a resolution to my condition. It allowed me to reflect on my ongoing relationship with anxiety.

Understanding anxiety does not end it, but it can change how you carry it.

To my readers: Have you ever experienced worry that felt constant or hard to quiet, and what helped you begin to recognize it for what it was?

Sunday, May 10, 2026

Inside Psychiatric Hospitalization in Ontario: A Lived Experience Guide to Units, Holds, and Healing Within the System

 

Inside Psychiatric Hospitalization in Ontario
A Lived Experience Guide to Units, Holds, and Healing Within the System

Why I Needed to Write This

There are experiences that change the way you see systems forever.

For me, psychiatric hospitalization was one of them.

I’ve been admitted in different ways, in different settings, at different points in my life when things were no longer manageable on my own. Sometimes it was an emergency. Sometimes it was a decision I didn’t fully understand until I was already inside it.

What I remember most is not just the clinical side of it, but the emotional side. The confusion. The fear. The silence. The waiting. The moments where I wasn’t sure if I was safe, or if I had simply been removed from the world I knew.

This series is not about explaining the system from the outside.

It is about what it felt like to be inside it.

And how I’ve come to understand those experiences with time, distance, and reflection.

The Series: My Experience With Psychiatric Hospitalization

This page connects a four-part series exploring psychiatric care in Ontario through lived experience.

Each piece reflects a different layer of the system.

Part 1: Behind Locked Doors

A Lived Experience of Psychiatric Hospitalization

There is a moment I still remember clearly.

Arriving in an ambulance. Moving through doors I didn’t choose to walk through. Sitting in a space that felt both protective and unfamiliar at the same time.

Psychiatric hospitalization was not one experience. It changed depending on where I was, how I arrived, and what state I was in emotionally.

What I learned is that being hospitalized is not just about treatment. It is about disorientation. About losing control of your environment and trying to understand what safety looks like when everything feels unfamiliar.

This piece reflects on what it actually feels like to be inside that experience.

Read the full blog: Behind Locked Doors

Part 2: 72 Hours in the System

A Personal Look at Psychiatric Holds and the Path Back to Myself

There was a time when my life changed direction in less than a minute.

One moment I was in a conversation. The next I was being told I could not leave.

The idea of a “72-hour hold” sounds simple when you hear it from the outside. Temporary. Short. Controlled.

But from the inside, it feels very different.

Time stretches. Thoughts race. Emotions shift between fear, confusion, and stillness I couldn’t explain.

This piece explores what those early hours felt like and how disorienting it can be to suddenly exist inside a system you didn’t choose.

Read the full blog: 72 Hours in the System

Part 3: What Helped While I Was Locked In

Resources Within Psychiatric Units That Supported My Healing

When I first entered psychiatric care, I didn’t expect to find support.

I expected restriction. Observation. Waiting.

But over time, I began to notice small things that made a difference. Routines that helped ground me. Conversations that made me feel less alone. Spaces where I could breathe a little easier, even in a difficult environment.

Support didn’t always look the way I thought it would.

Sometimes it was structure. Sometimes it was conversation. Sometimes it was just the quiet presence of being around others who were also trying to make sense of their own experience.

This piece explores those moments of support that existed within the system itself.

Read the full blog: What Helped While I Was Locked In

Part 4: Psychiatric Units vs Psychiatric Hospitals in Ontario

Where Healing Happens and How

Not all psychiatric care environments feel the same.

I’ve experienced both general hospital psychiatric units and standalone psychiatric hospitals, and the difference between them is not just structural. It is emotional.

One can feel fast, clinical, and transitional. The other can feel slower, more contained, sometimes more structured for longer-term support.

What stood out to me most was not just how care was delivered, but how the environment shaped how I experienced my own mind inside it.

This piece reflects on those differences from a lived perspective, not a clinical one.

Read the full blog: Psychiatric Units vs Hospitals in Ontario

What I’ve Learned Through These Experiences

Looking back, I no longer see psychiatric hospitalization as one single story.

It is a collection of moments that felt overwhelming, confusing, and sometimes even grounding in ways I didn’t understand at the time.

I’ve learned that systems are not just structures. They are environments that shape how people feel, think, and recover during some of the most vulnerable moments of their lives.

And while those environments are not always easy to be inside, they are often where some of the most important turning points happen.

Being Inside the System and Still Being Human

One of the most important things I’ve come to understand is this:

Being in a psychiatric hospital does not remove your humanity.

Even in moments where I felt stripped of control, overwhelmed, or unsure of what was happening next, I was still a person trying to understand my own experience.

I was still someone with a life beyond the room I was sitting in. Still someone with history, relationships, and a future I couldn’t fully see at the time.

This series is not about the system alone.

It is about what it means to stay human inside it.

Explore the Full Series

With that in mind

If you have ever been inside a psychiatric care environment, or supported someone who has, you may already know this:

There is no single way it feels.

But there is always a person inside it.

And that person matters.

Psychiatric Hospitals vs. Psychiatric Units in Ontario: Where Healing Happens and How - Part 4

 

Psychiatric Hospitals vs. Psychiatric Units in Ontario: Where Healing Happens and How - Part 4 of 4

Two Systems, One Journey

I have entered both psychiatric systems in very different ways. I have been restrained on a gurney, placed in isolation, and moved from one unit to another without control. I have also walked into a psychiatric hospital voluntarily, supported and hopeful for healing, and been met with kindness.

Despite these differences, one truth remained. Once the doors closed, I felt trapped. My autonomy was gone, and strangers controlled my path forward. My life paused, often indefinitely, without a clear roadmap back to myself or to freedom.

Whether in a general hospital psychiatric unit or a specialized psychiatric hospital, the emotional experience begins the same. Fear. Anxiety. Uncertainty. A sense of entering a world where your autonomy is no longer yours.

Psychiatric units became familiar to me. They followed a predictable pattern. A 72-hour hold, often involving restraints and isolation, followed by involuntary admission, medication, stabilization, and eventual discharge. A cycle that felt repetitive and transactional.

My first experience in a psychiatric hospital was different. While fear was still present, I did not feel unsafe. It took time, and a few emotional outbursts, to realize that restraints and long-term isolation were not part of the hospital’s approach. That realization created a sense of safety and allowed me to begin regulating my emotions.

I learned that environment shapes emotional experience. The same vulnerabilities existed in both settings, but the outcomes felt very different.

Psychiatric Hospitals vs. Psychiatric Units: Defining the Difference

One of the clearest differences between these systems is how they respond to crisis, especially during acute psychosis.

PICU vs. PICA

In a general hospital Psychiatric Intensive Care Unit (PICU), I was often restrained and placed in isolation when my symptoms escalated. These experiences left me feeling dehumanized and emotionally raw. They did not support my ability to regulate or move toward clarity.

At Ontario Shores, I was introduced to the Psychiatric Intensive Care Area (PICA). While it serves a similar purpose, the approach is different. There are no restraints or long-term isolation. Instead, patients are placed in a low-stimulation environment with one-on-one support, allowing time and space to stabilize.

I spent 10 days in this environment before transitioning back to the general unit. It was one of my shortest stabilization periods. That experience showed me how structure and environment can change how a crisis feels and how quickly healing can begin.

More broadly, psychiatric units are typically part of general hospitals. They are designed for short-term, crisis-focused care. Psychiatric hospitals are standalone facilities that provide longer-term treatment in a more structured, therapeutic environment.

Crisis vs. Continuum: The Emotional Pace of Care

The pace of care in each setting plays a significant role in emotional stability and recovery.

Psychiatric units operate with urgency. The goal is stabilization. Patients move quickly through assessment, medication, and discharge. This can feel efficient, but it often lacks a bridge between crisis and long-term recovery. I came to see this as a cycle. Stabilize, medicate, discharge, repeat.

In contrast, psychiatric hospitals move at a slower, more deliberate pace. There is space for reflection, participation in care, and rebuilding. The focus extends beyond symptom management to include structure, routine, and sustainable habits that support long-term mental health.

In one environment, the priority is crisis. In the other, it is continuity.

What the Environment Feels Like

The physical environment deeply impacts emotional wellbeing.

Psychiatric units can feel overwhelming. Bright fluorescent lights, constant noise, and a clinical atmosphere can heighten anxiety and disrupt sleep. The energy is often chaotic, which can be difficult for someone already navigating a mental health crisis.

Psychiatric hospitals feel different. They are quieter, more structured, and designed with healing in mind. Natural light, calmer spaces, and a slower pace create a sense of stability. These elements support emotional regulation and allow the nervous system to settle.

Environment alone does not create healing, but it can make healing more possible.

The People You Meet Inside Each Setting

Relationships within each setting also differ.

In acute care units like the PICU, patients are often in crisis. Emotions run high, and connections can be intense but unstable. Interactions are shaped by proximity and shared distress rather than long-term compatibility. These relationships are often temporary and driven by survival.

In psychiatric hospitals, connections can feel deeper. Patients are more stable, more present, and able to engage meaningfully. However, even these relationships are often temporary. Once discharged, lives diverge, and connections fade.

In both settings, shared experience creates moments of understanding. But ultimately, each person is navigating their own path to recovery.

What Healing Feels Like in Each Environment

Healing is not linear, and it is not tied to one setting alone.

In psychiatric units, healing often looks like stabilization. It is intense, urgent, and sometimes uncomfortable. In my experience, it has included restraints and isolation. While difficult, these moments did bring me out of acute psychosis and into a space where healing could begin.

In psychiatric hospitals, healing feels different. It is slower, more intentional, and focused on rebuilding. Structure, routine, and consistent support create the conditions for emotional stability and long-term recovery.

Both environments play a role. One interrupts crisis. The other supports growth.

Final Thoughts

Psychiatric Units vs. Psychiatric Hospitals

Both Places Hold Trauma and Hope

My experiences in both settings have been complex. Confinement, whether short-term or long-term, is never easy. There are practices within the system that must evolve, particularly the use of restraints and isolation.

At the same time, I recognize that both environments have contributed to my recovery. Each has played a role in stabilizing my mental health and guiding me back toward myself.

What made the greatest difference was not the system alone, but the people within it. The nurses, doctors, and fellow patients who showed empathy, understanding, and humanity during some of my most vulnerable moments.

Mental health care is not perfect. It is evolving. But within its complexity, there are still opportunities for healing, growth, and connection.

Different environments. Shared humanity. Both shaping my journey toward recovery and emotional stability.

Question to my readers:

Have you experienced different care environments, and how did they shape your sense of safety, identity, or healing?

Thursday, May 7, 2026

What Helped While I Was Locked In: Resources Within Psychiatric Units That Supported My Healing - Part 3

 

What Helped While I Was Locked In: Resources Within Psychiatric Units That Supported My Healing - Part 3 of 4

I Didn’t Expect Help Behind Locked Doors

After years of navigating psychiatric units, I stopped expecting meaningful support. The resources rarely felt aligned with my needs, and the environment often left me feeling unseen. Office doors stayed closed, and the very people responsible for inpatient and outpatient care felt distant.

There were always roles in place. A social worker for discharge planning, an addiction counsellor, housing support, occupational therapists focused on daily living, and psychiatrists leading structured group sessions on goal setting, medication, and mental health education.

Yet despite these services, the reality felt different. Too many patients, too little time, and not enough meaningful connection. Even though we were the patients, it often felt like the providers were just as confined, hidden behind closed doors and stretched too thin to engage.

I learned to self-advocate. Where others remained unseen, I refused to disappear. I pushed past closed doors, asked questions, and sought out whatever resources were available to support my healing and eventual discharge. Still, I did not expect help behind locked doors.

Then something changed.

During my most recent hospitalization, I was transferred to Ontario Shores Centre for Mental Health Sciences in Whitby, a facility specializing in complex mental health conditions. At first, I expected more of the same. A sterile environment. Limited connection. A focus on medication over healing.

I was wrong.

What I found was a space that challenged everything I believed about psychiatric care. A place where structure, routine, and support worked together to create the foundation for real healing and emotional stability.

What Support Looks Like Inside the Unit

It was a cold day in February 2024 when my Grama Judie transferred me to Ontario Shores, where I would stay for at least 60 days. I felt anxious. It felt like my final chance to get it right.

That evening, I was greeted by a nurse named Ragu. Instead of a quick intake, he gave me a full tour of the unit. He showed me the shared spaces, the cafeteria, the exercise area, the bathing facilities, and finally my room. He explained the daily schedule and asked me to complete a meal plan for the week.

It was a simple gesture, but it mattered.

For the first time in my hospitalization experience, I was being oriented into a space that felt like a temporary home rather than a holding place. Structure and routine were introduced immediately, replacing confusion and anxiety with clarity and calm.

After the tour, I met the rest of the evening staff, each introducing themselves and their role. I was shown where I would meet my psychiatric team and what to expect in the days ahead.

That night, I felt something unfamiliar. Hope.

For the first time, I believed that support inside a psychiatric unit could actually contribute to healing.

One-on-One Interactions That Felt Human

Meeting My Team

Within days, I met the nine-person team responsible for my care. Sitting in a large room with my Grama Judie, I watched as each member introduced themselves and explained their role in my recovery.

There was no rush. No urgency. Just presence.

In previous hospitalizations, time always felt scarce. Staff moved quickly, focused on efficiency rather than connection. But here, the pace was different. The interaction felt human.

The team included a social worker, addiction specialist, occupational therapists, a psychiatrist, psychotherapist, physiotherapist, nurse practitioner, and general practitioner. Each person represented a piece of my healing journey.

When they finished speaking, I was asked if I had questions. Instead, I cried.

For years, I had felt reduced to a diagnosis. Now, I felt seen as a person.

Learning the True Meaning of Circle of Care

By March 2024, I was discharged from Ontario Shores as a changed woman.

My team, who I came to call “The Fantastic Nine,” supported me in rebuilding my mental, physical, and emotional health. Through psychotherapy, medication adjustments, addiction support, and consistent check-ins, I began to regain emotional stability.

I worked with a physiotherapist to heal from the physical trauma of restraints. I participated in outings and activities that reintroduced me to everyday life. I laughed, cried, and connected with staff who treated me with empathy and respect.

Their consistency helped me feel safe.

I learned that support is not just a system. It is the people within it.

Therapeutic Programming That Offered Expression

Expression became a powerful tool in my healing. When words were not enough, creative outlets helped regulate my emotions and restore balance.

In many psychiatric units, therapeutic programming can feel limited due to funding and staffing constraints. Basic offerings like group therapy, yoga, and art sessions are often available, but not always consistent.

At Ontario Shores, the difference was clear.

There was access to music therapy, art therapy, sculpting, and structured psychoeducation through the Recovery College. Patients could build personalized learning plans, supported by staff who guided both emotional understanding and practical skills.

Physical wellness was also prioritized. Access to a gym, guided exercise, and movement-based healing supported both mental health and overall well-being.

Even small moments mattered. Pet therapy sessions, shared creative activities, and group engagement created opportunities for connection and emotional release.

These programs were not just activities. They were part of a structured approach to healing, supporting recovery in a meaningful and consistent way.

The Hidden Resources: Quiet Moments of Connection

One of the most unexpected resources was other patients.

Shared experience creates a unique form of understanding. Conversations, meals, and small daily rituals brought comfort during confinement. These moments, though informal, contributed to emotional stability.

There is a balance to be mindful of. Connections formed in these spaces can be meaningful, but they can also become intense or fragile. Boundaries are essential.

Still, the presence of others who understand your reality can ease isolation. You laugh together, share stories, and exist in a space where your experience does not need explanation.

My Reflection on Hospitalization: What Helped Me Most

After nearly two decades of hospitalization, it has been difficult to separate the system from the harm I have experienced. Restraints, isolation, and moments of dehumanization shaped my perception of psychiatric care.

For a long time, I believed healing only began after discharge.

But this experience changed that belief.

I began to see support in places I had previously overlooked. In structure. In routine. In consistent care. In human connection.

Healing is not linear. It does not require perfect conditions. It can begin in imperfect environments when the right elements come together.

This shift in perspective allowed me to reframe my experiences. Instead of expecting failure from the system, I became open to the possibility of healing within it.

That openness made all the difference.

Final Thoughts

Healing Can Begin in Unexpected Places

No one chooses psychiatric hospitalization. It is often accompanied by fear, loss of control, and emotional vulnerability.

Yet within that experience, there can be moments of support, connection, and growth.

Healing does not depend on the setting being perfect. It depends on the willingness to recognize the opportunities within it. Even in the most challenging environments, there are moments that can guide you back to yourself.

I did not choose hospitalization. But I found pieces of healing within it.

To my readers:
Have you ever found unexpected support in a place you did not choose, and what helped you recognize it?


Tuesday, May 5, 2026

72 Hours in the System: A Personal Look at Psychiatric Holds and the Path Back to Myself – Part 2

 

72 Hours in the System: A Personal Look at Psychiatric Holds and the Path Back to Myself - Part 2 of 4

In the past 17 years, I have experienced 13 hospitalizations, each beginning with a 72-hour psychiatric hold for assessment. In total, that is 936 hours spent in observation and isolation during the most acute phase of my mental health crises. This number does not include the more dehumanizing experiences that often follow, such as being transferred as an involuntary patient to the Psychiatric Intensive Care Unit (PICU), which I explore in Part 4 of this series.

The path to a 72-hour hold is rarely calm or controlled. For me, it often begins with a wellness check initiated by police. These calls may come from loved ones who recognize a mental health crisis, or from strangers concerned for safety. While necessary, the sudden presence of police can intensify fear, confusion, and emotional instability. In those moments, you shift from being seen as a person to being assessed as a risk.

Once the decision is made, you are apprehended and placed in the back of a police cruiser. The loss of autonomy is immediate. I can pinpoint the exact moment everything changes. It is when my hands are pulled behind my back and the cold metal of handcuffs tightens around my wrists. Even when I ask for relief, the response is predictable. “We are almost there.” But when you are in manic psychosis, physical pain feels amplified. The handcuffs become more than restraint. They signal the end of freedom and the beginning of confinement.

By the time I enter the Emergency Room, I already know what lies ahead. The 72-hour hold is only the beginning. My history with bipolar disorder and psychosis often means I will become an involuntary patient. From that point forward, I must prove to the psychiatric team that I am more than a risk. I am still a person capable of recovery.

A Bipolar Woman’s Lived Experience: What Is a 72-Hour Hold?

A 72-hour hold feels like a storm inside the mind. Sometimes violent, sometimes quiet, but always present. Understanding the system helped me reclaim some sense of control, even when my emotional reality told me I had none.

Under Ontario’s Mental Health Act, several forms govern psychiatric assessment and hospitalization:

Form 42: Application for Psychiatric Assessment

This initiates the process. When police bring me to the hospital, a psychiatrist signs this form based on observed behaviour.

Form 1: Involuntary Admission (72 Hours)

This allows detention for up to 72 hours if I am considered a risk to myself or others. It is the foundation of the psychiatric hold.

Form 3: Extended Involuntary Admission (14 Days)

If I am not stable after assessment, I am held for further treatment.

Form 4: Certificate of Renewal

This extends hospitalization in increasing increments, one month, two months, then three, depending on clinical need.

Before I understood these processes, I believed I would never leave the hospital. The uncertainty intensified my anxiety and disrupted any sense of emotional stability. Over time, learning the system gave me back a sense of power. Knowledge became part of my healing. It allowed me to advocate for myself, ask informed questions, and begin imagining life after discharge.

Understanding structure, even within confinement, helped restore hope.

The First Hours: Fear, Confusion, and Loss of Control

In the first hours of a 72-hour hold, I do not always feel fear. I see it. I see it in the eyes of nurses and security staff responsible for my care.

Though I have never been physically violent, I have been verbally aggressive. In psychosis, confusion becomes something I try to solve. My mind creates problems rooted in delusion, codes on walls, imagined escape routes, distorted realities. When staff challenge these beliefs, fear replaces confusion, and I react defensively.

Even when I believed I was in control, I was not. My behaviour reflected the severity of my illness, throwing food, refusing care, stripping away dignity in desperate attempts to regain control. I was both deeply unwell and, in moments, painfully aware of it.

When the 72-hour hold ends, I am often still in psychosis. This leads to transfer into the PICU, where isolation and restraint become more frequent. Days blur into nights. Time stretches and collapses at once. The goal becomes survival. Enduring the hold, the assessment, and the long path back to myself.

Inside the 72 Hours: Structure, Observation, and Stillness

Some hospitals use a Mental Health Triage Unit, where patients are placed in private rooms and monitored continuously. Depending on behaviour, doors may remain unlocked or locked without warning.

With manic energy, stillness feels impossible. My behaviour often extended the time before psychiatric assessment, reinforcing the system’s perception that I required acute care.

The goal of the 72-hour hold is to reduce stimulation, observe behaviour, and assess mental capacity. It is a structured environment designed to evaluate risk and determine next steps.

Time behaves strangely in these spaces. Without access to phones, personal belongings, or external connection, your world narrows to observation and evaluation. The outside world disappears. You are suspended in a moment where everything depends on how your mind presents itself under pressure.

This vulnerability can shape outcomes, for better or worse.

Emotional Reality: What No One Sees

There are aspects of the 72-hour hold that remain unseen, even by me.

In crisis, I am often moved quickly into isolated observation rooms. Disoriented, I rarely process my surroundings. Only later, in moments of clarity, do I recognize the spaces where I was confined.

These rooms are small, with windows meant for observation rather than connection. They are designed for safety, but they can feel like confinement without dignity. In these moments, basic needs become dependent on staff response. When those needs are not met in time, shame can take hold.

I try not to carry that shame. What people do not see is the depth of illness during these moments. Psychosis distorts behaviour, perception, and control. The actions that follow are not always choices. They are symptoms.

Isolation intensifies everything. Claustrophobia builds. The need for freedom becomes overwhelming. Resistance often leads to further restraint, creating a cycle that feels impossible to escape.

These are the realities rarely discussed, experiences known mostly to patients and staff behind closed doors.

After the Hold: Returning to Life Changed

For me, the 72-hour hold is never the end. It is the beginning of a longer hospitalization journey. After the hold comes continued treatment, often in the PICU, followed by months of stabilization focused on medication, sleep, and emotional recovery.

Even after psychosis lifts, the process continues. Healing requires time, structure, and support. Emotional stability is rebuilt slowly.

I have learned that recovery is not about returning to who I was. It is about understanding who I am becoming. Each hospitalization changes me. Each experience reshapes my relationship with mental health, healing, and identity.

I carry accountability for my actions during crisis, even when they are symptoms of illness. I also recognize the humanity of the staff who care for me, individuals who absorb the emotional weight of these moments.

To rebuild after hospitalization, I rely on self-compassion, forgiveness, and grace. These are essential tools for healing, especially for women navigating complex mental health conditions like bipolar disorder.

Leaving the hospital is not the end. It is the beginning of reintegration, of learning again how to exist in the world with emotional awareness and resilience.

I have been changed by every 72-hour hold. While I may never agree with all aspects of the system, particularly the use of restraint and isolation, I understand that my journey through it continues to shape my path toward healing and emotional stability.

To my readers:

How do you make sense of moments when your life changes without your consent, and how do you begin to rebuild your story afterward?

Sunday, May 3, 2026

Behind Locked Doors: A Lived Experience of Psychiatric Hospitalization - Part 1


Behind Locked Doors: A Lived Experience of Psychiatric Hospitalization - Part 1 of 4

I Didn’t Know If I Was Being Saved or Discarded

It was the summer of 2006 when my mother received a call from my then-partner. He described my strange behaviour, my loss of control, and the chaos he could no longer manage. He told her something was terribly wrong with Onika.

My mother was minutes away from leaving for a 12-hour nursing shift, four hours away from her child, yet she knew she had no choice. She made the trip to Quebec with my father and aunt to assess the situation herself.

When she arrived, she didn’t recognize me. I was deep in mania, consumed by psychosis, experiencing visual and auditory hallucinations, delusions of grandeur, violent outbursts, disorganized thinking, and a complete break from reality. I was unreachable. So my parents made the painful decision to take me to a Toronto hospital for psychiatric evaluation and treatment.

I remember arriving at the Emergency Room, completely naked, confused, and terrified. My mother tried to put shoes on my feet as she cried. Everything happened quickly after that. A nurse and security guards restrained me and wheeled me inside. The last thing I saw was my mother screaming my name in the driveway.

In a brief moment of clarity, I realized something was terribly wrong. I fought against the restraints, feeling trapped in my own body. I don’t remember consenting to any of it. I was no longer in control.

I don’t know if I passed out from exhaustion or from the injection administered to me. When I came to, I was alone in a brightly lit isolation room. My family was gone. I felt discarded, powerless, and afraid.

Later, I would learn this was the beginning of a psychiatric 72-hour hold. But in that moment, I only knew fear, confusion, and anxiety. I didn’t understand how I had gone from being myself to being inside a system that now controlled every part of me.

Hospitalization, while necessary for mental health stabilization, can feel both like rescue and removal, saving you while stripping you of autonomy.

When Crisis Becomes Clinical (The Shift Into the System)

That first crisis felt endless. My parents stayed with me for two days, completing admission forms and trying to understand what had happened.

By day three, I hadn’t slept in 56 hours. Doctors made the decision to sedate me heavily to prevent permanent psychosis. I was placed into a medically induced state so my mind could recover. I slept for four days.

When I woke, I was disoriented. The first thing I noticed was the scratches on the wall, marks left behind by previous patients. I tried to open the door, but it was locked. That was the moment I realized my autonomy was gone.

In this mental health system, nothing was yours, not your schedule, your movements, or even your basic needs. Everything required permission.

I called for help to use the washroom, but no one came in time. I wet myself and lay there, overwhelmed with shame, exhaustion, and emotional defeat. Sleep became my escape.

In those moments, I didn’t think about healing or recovery. I simply wanted to disappear from the reality of my situation.

Inside the Ward: Routine, Rules, and Emotional Reality

After isolation, I was moved to a room with a bathroom. I could wear my own clothes again. My mother began visiting daily, bringing food and comfort. We spent evenings quietly together, sometimes talking, often just holding each other as I cried.

The psychiatric ward operated on strict structure and routine. Days began at 7:30 AM and ended at 10:30 PM. That structure, though restrictive, became a foundation for emotional stability.

Each morning, nurses asked the same questions:
How did you sleep? How is your mood? Did you complete basic hygiene?

The focus was always on routine, behaviour, and medication.

Daily group sessions included mental health education, creativity, mindfulness, and interpersonal skills. Some were mandatory, reinforcing structure and engagement.

Over time, I learned that following the system helped you move forward. Structure, routine, and compliance often led to discharge. Disruption could send you back into isolation.

The ward felt like a controlled environment where stability was slowly rebuilt. While it could feel dehumanizing at times, it also provided a framework for healing and recovery.

Repetition, though monotonous, became grounding. For someone living with Bipolar disorder and psychosis, structure is not just helpful, it is essential.

The Shame, the Silence, and the Stigma

In the early stages of my mental health journey, I didn’t understand my anxiety or emotional responses. When friends called to check on me, I felt fear instead of comfort.

What if they saw me differently?
What if I never recovered?

The stigma surrounding mental illness weighed heavily on me. I internalized it, turning my diagnosis into my identity.

I withdrew from people, isolating myself emotionally. I carried the shame silently, believing I had failed in life despite doing everything “right.”

Instead of learning how to manage my mental health, I avoided it. I rejected the idea that hospitalization could be a place of healing. Instead, I saw it as proof of failure.

Looking back, I realize that stigma, both external and internal was one of the most damaging aspects of my experience.

What Hospitalization Taught Me About Myself

Over 20+ years and 13 hospitalizations, I have learned that while the system is imperfect, it plays a critical role in managing severe mental illness.

Hospitalization acts as a forced pause, a reset when emotional stability is lost. It provides structure, routine, and support during moments of crisis.

It teaches boundaries, stress management, and the importance of consistency. These are essential tools for long-term mental health and women’s wellness.

I have also learned the value of a strong support system. My personal and professional networks understand my journey and help me navigate both crisis and recovery.

Most importantly, I have learned to advocate for myself. My experiences both positive and traumatic have given me a deeper understanding of the mental health system and my place within it.

Hospitalization is not something I welcome, but I respect its role in my healing journey.

Final Thoughts

Hospitalization: A Chapter, Not an Ending

Hospitalization is not the end of my story, it is a chapter in my ongoing journey toward healing and emotional stability.

It is often the hardest part, but also the most necessary when psychosis returns. It provides the tools and structure needed to rebuild and reintegrate into everyday life.

That said, the system must evolve. Practices like restraints and prolonged isolation need to be re-examined, as they can hinder recovery rather than support it.

When my dignity remains intact through these experiences, that is progress worth celebrating.

Hospitalization is part of my recovery process not the definition of it. It is a turning point, not a conclusion.

Question to my Readers:

How do we make meaning of experiences that feel both protective and painful and how do we carry them forward without losing ourselves?


Thursday, April 30, 2026

Why Lived Experience Matters in Social Work Education

 

Why Lived Experience Matters in Social Work Education

As I waited for the University of Toronto Master’s of Social Work (MSW) students to settle into the classroom, I could feel my nervousness rising. These young people are the future of social work, and I was a woman who had lived through psychosis, invited to offer something no textbook could provide. My role was simple in theory: share my lived experience of mental illness, offer insight into one of its most complex realities, and leave a lasting impact as they prepared to support clients experiencing psychosis firsthand. Simple, right?

Yet as I listened to the professor’s lecture on psychosis, stigma reduction, medication side effects, and intervention strategies, the full weight of my experience returned. How could I capture what it truly means to live through psychosis in such a short time? How could I help them understand that people navigating this form of mental illness are still whole, still human, and deserving of dignity, patience, and compassionate care?

Through my work with the University of Toronto’s Factor-Inwentash Faculty of Social Work, alongside social workers and lived experience advisors, I contributed to a Psychosis Simulation Project. Our goal was to bring lived experience into social work education. The initial result was an educational video that bridges clinical knowledge with human reality, highlighting both practitioner perspectives and the voices of those who have experienced psychosis and returned to wellness.

This blog explores why lived experience must be part of social work education. Psychosis cannot be understood solely through clinical language or diagnostic criteria. It must be understood through the lives of real people who live, work, love, and heal beyond their diagnosis.

Humanizing Psychosis Beyond the Label

One of the most important messages I share is this: I am not psychosis. I am not my illness. I live a full and meaningful life.

For many MSW students, their early exposure to mental health is rooted in clinical settings. Clients appear as case files, diagnoses, or mental status exams. In those environments, people can become reduced to symptoms. Their humanity is often overshadowed by hallucinations, delusions and disorganized speech. 

What is often missing is the fuller picture. The person behind the diagnosis may be a mother, a sister, a student, an employee, or a friend. They have identities, relationships, and aspirations that exist far beyond their mental illness.

Sharing my lived experience challenges this narrow lens. It reminds future social workers to see the person first and the diagnosis second. Hearing directly from someone who has experienced psychosis and built emotional stability, structure, and routine in recovery helps reduce stigma and deepen empathy. It brings forward dignity, identity, and the complexity that defines each individual life.

Stages of Psychosis: What to Expect Before, During, and After

Individuals experiencing psychosis often move through distinct stages, each with its own challenges and needs. Understanding these phases is essential for effective mental health support and long-term healing.

Before Psychosis

In the early stage, symptoms such as paranoia, delusions, and hallucinations may begin to surface. Many individuals are still living in the community, often without a strong support system or awareness of what is happening.

In these situations, crisis intervention may occur, sometimes involving police wellness checks. While intended for safety, these interventions can feel deeply distressing and, in some cases, harmful.

For social workers, this stage highlights the importance of early, compassionate intervention. Consistent check-ins, emotional support, and trust-building can make a meaningful difference. Care should not begin only after the crisis peaks. It must start as early as possible.

During Psychosis

During psychosis, individuals are not grounded in shared reality. Their thoughts, emotions, and behaviours may become intense, disorganized, or unrecognizable. Emotional responses can feel overwhelming, often described as a form of emotional hijacking, where the brain’s fear response overrides rational thinking.

It is important to understand that behaviours during this phase are symptoms of mental illness, not reflections of character.

Social workers must respond with steadiness, empathy, and a willingness to look beyond the moment. Supporting both the individual and their support system helps create a foundation of safety and understanding. This foundation becomes critical when the person begins to return to baseline.

After Psychosis

The period after psychosis is just as important as the crisis itself. Recovery does not end when symptoms fade. In many ways, this is where the deeper work of healing begins.

Supporting individuals in rebuilding structure, routine, and stability is essential. This may include sleep regulation, medication management, and reconnecting with daily life.

Social workers play a key role in this phase. They become a steady point of reference as individuals reintegrate into their lives. Care must remain continuous, grounded in patience, empathy, and non-judgment. True recovery is not a single moment but an ongoing process of rebuilding and growth.

Medication Management: Nuance and Non-Compliance

Discussing medication in mental health care is rarely straightforward. My own experience reflects this complexity. There have been times when I resisted medication and times when I recognized its value in supporting my stability and recovery.

For many individuals, hesitation around medication is rooted in real concerns. Side effects from antipsychotics and mood stabilizers can include emotional numbness, fatigue, and significant weight gain. These changes can impact identity, self-esteem, and overall well-being, especially for women navigating mental health and body image.

There is also the reality of forced treatment during acute episodes, when individuals may not have the capacity to advocate for themselves. This can create lasting distrust toward medical systems.

For social workers, advocacy is essential. This means asking thoughtful questions, listening without judgment, and helping bridge communication between clients and psychiatric teams. Medication management should be approached with empathy, collaboration, and respect for the client’s lived experience.

Lived Experience Reflection: The Social Worker Who Helped Me Trust

In 2016, during a severe episode of psychosis, I was hospitalized at St. Michael’s Hospital in Toronto following a traumatic wellness call. What followed was a period marked by isolation, restraints, medication challenges, and a deep mistrust of the system. At the same time, I was experiencing homelessness.

It was during this time that I met Tarak, the social worker who would change the course of my recovery.

Our early interactions were difficult. I was fearful, reactive, and guarded. I pushed him away with anger and mistrust. Yet he remained consistent. He showed up daily, calm and present, even when I tried to drive him away.

What I did not realize at the time was that he was listening, not just to my words but to the pain beneath them. He recognized my trauma, my fear, and my desire to heal, even when I could not express it clearly.

At one point, he made me a simple offer. Give him a month. If I was not satisfied, he would step aside. That consistency, paired with empathy, allowed me to take a chance on trust.

Tarak supported me in finding housing, rebuilding structure, and reconnecting with life. He sat with me through small moments that became significant turning points. Over time, he became more than a social worker. He became a steady presence in my healing journey.

He saw beyond my Bipolar disorder and psychosis. He saw possibility. He helped me reconnect with my sense of self, my creativity, and my potential. That belief changed everything.

Final Thoughts

Speaking with MSW students was deeply meaningful. It felt like an opportunity to shift how future social workers understand mental health, not just as a clinical field but as a human experience.

Lived experience brings depth that textbooks cannot offer. It adds context, emotion, and reality to the study of mental illness. It reminds us that behind every diagnosis is a person with a full life, not defined by their most difficult moments.

Psychosis is part of the story, but it is never the whole story. Healing, growth, and emotional stability are possible. And when social workers are trained to see the whole person, not just the symptoms, they become far more effective in supporting lasting recovery.