Monday, January 12, 2026

A Complex Storm: Understanding a New Diagnosis of Schizoaffective Disorder

A Complex Storm: Understanding a New Diagnosis of Schizoaffective Disorder

A Diagnosis I Didn’t See Coming

It was January 2025 when I started a group trauma informed treatment program at Ontario Shores Centre for Mental Health Sciences. For the first time in the history of my mental illness, I was given access to my personal medical records from my stay at the psychiatric hospital. I was curious about what the medical staff, social workers, psychotherapists, and psychiatrist had observed while I was deeply unwell during my three month residency in 2024. When I began exploring the daily, detailed reports about my behaviour and activity on the unit, nothing seemed out of the ordinary. It all appeared to fit my experience of mania and how I remembered behaving.

Then I opened a Psychosocial Assessment dated February 2, 2024, and something shifted inside me. It felt like the identity of my illness had changed, and with it, the way I had understood myself for over 20 years. The report read:

Ms. Onika Dainty is a 41 year old woman with a diagnosis of schizoaffective disorder, bipolar type, with noted borderline traits.

The ground beneath my feet shook. I knew it was not a medical error. I felt confused and betrayed, but also like I had just been handed another piece of the puzzle that makes up my complex mind. I knew very little about this diagnosis, yet I was determined to face it head on.

Being newly diagnosed with schizoaffective disorder can feel overwhelming, isolating, and hard to explain, even to yourself. This blog explores what schizoaffective disorder is, how it overlaps with diagnoses like bipolar disorder, and what it can mean to live with a layered mental health condition.

What Is Schizoaffective Disorder? A Blended Symptom Profile

What is Schizoaffective Disorder?

Schizoaffective disorder is a complex mental illness that blends symptoms of schizophrenia, such as hallucinations, delusions, and disorganized thinking, with symptoms of a mood disorder, such as depression or mania. This combination can disrupt thoughts, emotions, and daily functioning. There are two main types: bipolar type and depressive type. It is often misdiagnosed early because the symptom profile overlaps with both schizophrenia and mood disorders like Bipolar disorder.

Schizoaffective vs Bipolar vs Schizophrenia

Schizoaffective disorder is a hybrid condition with a blended symptom profile. Schizophrenia and Bipolar disorder have distinct clinical categories, with schizophrenia typically defined by psychosis and Bipolar disorder defined by episodic mood shifts. The overlap becomes especially confusing when someone experiences manic psychosis and continues to have psychotic symptoms after the mood episode begins to stabilize. In other words, the mood may calm down, but hallucinations, delusions, or disorganized thinking can linger beyond the manic phase.

The Emotional Weight of a Complex Diagnosis: A Formally Bipolar Woman’s New Blended Reality

The biggest challenge I faced with my new diagnosis of Schizoaffective disorder-bipolar type, was the feeling of being misled by my medical team. I was almost a year out of hospital when I discovered it. If I had not been curious enough to read my medical reports, I would have continued living under a label that no longer fit the full picture of my mental health.

I was angry, ashamed, and afraid. The moment I read Schizoaffective disorder in my file, I felt like I had lost my identity. I felt like I had walked down the wrong path on my journey to wellness and that I was too far in to turn back and start over.

And yet, there was also relief. I had always felt pieces of my mental health puzzle were missing. When I am in psychosis, I have experienced auditory delusions, visual hallucinations, and extreme disorganized thinking. My Bipolar disorder framework could not fully explain those symptoms, so I told myself they were simply part of my manic episodes. After being in and out of psychosis for almost a year, unable to manage on my own, admitted and discharged from units whose main mandate was to stabilize me, I eventually became a resident of a mental health hospital with the time and resources to observe me properly.

When I saw the new diagnosis, I thought I should feel gratitude, but instead I mourned. I mourned the woman who had fought for almost 20 years against stigma, discrimination, and misunderstanding related to Bipolar disorder. I became an advocate, a peer support specialist, and a woman who learned the language of mental health so I could move through a world that often saw me as broken. How would I keep moving forward if I did not even know what I had? If my care team was not being transparent with me?

That evening I called my cousin in tears, and he asked me a profound question: Are you a different person than you were yesterday? Are you still the woman who has the tools to manage your mental illness, regardless of what it is called?

The answer was a resounding yes. My diagnosis had changed, but I had not. I was still Onika. I was still determined. My goal has always been healing, emotional stability, and a full, joyous, robust life. Nothing changed except that I now had a more complete picture of my symptom profile. I had to let go of the person I thought I was, close the door on the diagnosis I believed was mine, and make space to learn and grow within this new blended reality.

Learning to Manage the Dual Sides of the Diagnosis

Once I moved through the initial shock of my Schizoaffective disorder diagnosis and began educating myself, I was able to take my power back and rebuild a management strategy that spoke to all parts of my mental health. I started by looking at treatment options and realized they were similar to what I already knew. A combination of antipsychotics, mood stabilizers, and psychotherapy was recommended by my mental health care team.

Since my discharge from Ontario Shores Centre for Mental Health Sciences in 2024, I have not experienced psychotic symptoms, but I have noticed longer mood shifts. I track these mini episodes in my daily planner because structure and self awareness help me stay grounded.

Managing Schizoaffective disorder has its challenges, but I prioritize routine, healthy habits, and stability as a form of protection. Sleep hygiene has become a primary pillar of my care plan. I am still a 5 a.m. person, but now I take my medication earlier so I can get eight to ten hours of sleep consistently. My second pillar is stress management. I use meditation, breathwork, and daily movement to reduce anxiety and support emotional regulation. My third pillar is medication adherence and transparency with my healthcare team. I take my medication as prescribed and check in monthly, or sooner if I feel a crisis on the horizon. The final pillar is self care, self compassion, and grace.

I feel brand new in this diagnosis, so I keep reminding myself that once upon a time I was new to Bipolar disorder too. I felt helpless and alone then. Over time, I learned to advocate for myself. I learned to lean on my support team. I learned that healing is a process, and that psychoeducation, routine, and community can hold you steady when your mind feels loud.

Final Thoughts

It’s Okay to Be in the Process

With this new diagnosis, I have had to accept a few hard truths. First, it is okay to be in the process, as long as I am an active part of the process. This diagnosis is part of my reality, but it is words on a page in the next chapter of my life, not the entire book and not how my story ends.

I have also learned to stop chasing the “right” label and start listening to my lived experience. Schizoaffective disorder is simply terminology for a cluster of symptoms I have always carried. In many ways, it is not a detour. It is a more accurate map for the journey I have already been on.

Whether it is Bipolar disorder, anxiety, PTSD, ADHD, or Schizoaffective disorder, I have always fought for a better life while living with mental illness. None of these labels define me. They guide me toward understanding the unique, and often beautiful, trappings of a complex mind.

To my readers: If a diagnosis could be a doorway instead of a definition, what kind of understanding might you find on the other side?

Monday, January 5, 2026

More Than One Storm: Managing ADHD with Other Mental Health Diagnoses | Being Diagnosed with Multiple Disorders - Part 3

 

More Than One Storm: Managing ADHD with Other Mental Health Diagnoses

Being Diagnosed with Multiple Disorders - Part 3

I Thought It Was Just Anxiety, Then Came ADHD

For years, I blamed my forgetfulness, restlessness, and impulsivity on anxiety or mood swings. Then came the ADHD diagnosis, and suddenly the pieces clicked into place.

Since childhood, I lived with a relentless internal dialogue. The noise in my head only quieted when I shook it hard, almost violently, as if resetting my brain. That internal monologue followed me into adulthood. When I was diagnosed with Bipolar I disorder, I explained the noise as part of bipolar symptoms that intensified during episodes and lingered during anxiety or stress, even in remission.

Although I was prescribed medication to stabilize my mood, manage psychosis, and treat anxiety and PTSD, the constant mental chatter never fully stopped. It was not until my hospitalization in 2023 that a hospital pharmacist raised the possibility of co-occurring Attention Deficit Hyperactivity Disorder (ADHD). He explained how ADHD often goes undiagnosed in people with Bipolar disorder because stabilizing severe mood symptoms takes priority. He encouraged me to pursue testing.

When I finally spoke to my psychiatrist, he agreed. The results were clear. I was diagnosed with ADHD alongside Bipolar I disorder.

Living with ADHD alongside Bipolar disorder, anxiety, or PTSD adds complexity, but it also brings clarity when understood in context. This blog explores how ADHD shows up in people with multiple diagnoses, how to distinguish overlapping symptoms, and how to manage them with compassion, structure, and self awareness.

What ADHD Really Looks Like, Especially in Adults with Other Diagnoses

ADHD in adults often presents as chronic inattention, disorganization, difficulty with focus, time management challenges, missed deadlines, and losing items. Hyperactivity may look like restlessness, constant motion, or feeling unable to slow down. Impulsivity can show up as interrupting, impatience, impulsive decisions, mood shifts, or emotional outbursts. These symptoms affect work, relationships, and daily functioning, and they are often rooted in childhood experiences or trauma.

ADHD, Bipolar disorder, and Anxiety disorder share overlapping symptoms including impulsivity, irritability, distractibility, restlessness, and sleep disruption. This overlap can make diagnosis challenging. ADHD symptoms tend to be persistent and consistent, while bipolar symptoms are episodic, cycling between mania and depression. Anxiety is characterized by excessive worry, but all three conditions share emotional dysregulation and focus difficulties.

Because Bipolar disorder is severe and volatile, its symptoms are often treated first, which can delay ADHD diagnosis. ADHD is a neurodevelopment disorder that affects executive function, emotional regulation, self control, and attention. Anxiety disorders exist as a separate category but frequently co-occur with both Bipolar disorder and ADHD, creating symptom masking that complicates diagnosis.

Historically, Black women, neurodivergent adults, and trauma survivors have experienced delayed or missed diagnoses. Ongoing self monitoring and transparent communication with mental health providers are essential for accurate diagnosis and effective treatment.

Untangling the Threads: ADHD in a Multi Diagnosis Life

Living with multiple mental health diagnoses requires understanding how each condition shows up in your body and mind. When I received my ADHD diagnosis in 2024, I felt both overwhelmed and relieved. I have a research oriented mind, so I immersed myself in psychoeducation, peer support, and medication information. Over time, I gained clarity about how ADHD fits into my symptom profile.

For years, I attributed my impulsivity solely to manic episodes. While mania intensifies impulsive behaviour, I learned that ADHD driven impulsivity is chronic and rooted in executive function challenges. Manic impulsivity is episodic and driven by mood disturbance. Recognizing this distinction helped me manage one of my most difficult symptoms with greater self compassion.

Understanding this difference allowed me to build routines, structure, and healthy habits that prepare me for both ADHD related impulsivity and bipolar mood shifts. I learned to check in with myself and my support team, remain transparent with my healthcare providers, and ask for help early.

I also learned to distinguish between depressive episodes and ADHD related executive dysfunction. There are times when my body shuts down completely. I feel no sadness, just profound exhaustion and mental blankness. Rest and sleep regulation are the only remedies. Other times, emotional overwhelm and depressive inertia take hold. During those periods, I lean on my support system and remind myself that bipolar depression will pass with effort, care, and time.

Identifying whether a challenge stems from ADHD or Bipolar disorder helps me respond with the right tools and protects my overall mental health.

Strategies That Work for ADHD, Even When You’re Managing Other Disorders

Managing ADHD alongside other diagnoses requires an integrated and personalized treatment plan. In my experience, the most effective approach combines medication management, psychotherapy such as Cognitive Behavioural Therapy (CBT), and lifestyle strategies centred on structure, routine, and healthy habits.

Working collaboratively with psychiatrists and therapists ensures comprehensive care. Treating the most impairing condition first often reduces symptoms across diagnoses. The tools I developed to manage Bipolar I disorder became invaluable when ADHD entered the picture.

Daily structure supports my stability. I rely on planners, to do lists, timers, medication reminders, and consistent sleep hygiene. I break tasks into small steps, schedule rest intentionally, and use energy peaks wisely. Digital tools like Todoist, Focusmate, or Habitica offer ADHD specific support. Peer support groups can also be helpful when they align with your individual needs.

Final Thought

Receiving an ADHD diagnosis required me to rethink how this condition fits into my mental health story. Transitioning from a single diagnosis to a multi diagnosis life was overwhelming at times, but it also brought freedom.

The little girl who once shook her head to quiet the noise can rest now. I am in the driver’s seat. ADHD is part of my story, not the whole book.

Though there are more letters attached to my diagnosis profile, I am no longer afraid. I am informed, supported, and equipped with tools that align with how my mind actually works. There will always be challenges, noise, and unpredictability, but I face them with clarity, hope, and faith rather than fear.

To my readers:

What would shift for you if you stopped seeing ADHD as a failure to focus and started seeing it as a call to design a life that truly fits you?


Monday, December 22, 2025

More Than One Name: How I Manage Life with Multiple Mental Health Diagnoses | Being Diagnosed with Multiple Disorders Series - Part 2

 

More Than One Name: How I Manage Life with Multiple Mental Health Diagnoses

Being Diagnosed with Multiple Disorders Series - Part 2

Uncharted Territory: I’m Not Just Bipolar, I’m Also…

The day I was diagnosed with Bipolar disorder was the day my life changed forever. Then came the diagnosis of General Anxiety disorder rooted in Post Traumatic Stress Disorder. In October 2024, I was also diagnosed with Attention Deficit Hyperactivity disorder. With each new acronym, each new label felt heavy and oddly relieving at the same time. Finally, things began to make sense, even as they became more complex.

Being diagnosed with multiple mental health conditions can feel overwhelming, confusing, and isolating. Yet it can also become a roadmap for healing when we learn how to manage them together. The process has not been easy, but with the right support system and mental health team, I felt less alone and deeply grateful that the jigsaw puzzle of my mind was finally revealing the missing pieces.

This blog explores the emotional and practical journey of living with more than one diagnosis, and how to build a life that honors every layer of your mental health.


Multiple Diagnoses, One Body: What It Really Feels Like

Navigating overlapping symptoms can feel unbearable at times, but not knowing what is happening can be even worse. I spent years feeling mentally and emotionally paralyzed because my symptoms never fully fit my original Bipolar I diagnosis.

As a child, I experienced extreme anxiety and a noisy internal monologue that never seemed to quiet. I did not realize then that this constant mental chatter was connected to ADHD. Decades later, the medication prescribed to address it finally softened the noise, allowing me to focus and think clearly.

When one disorder masks or mimics another, especially within the bipolar cycle, it is easy to assume the symptoms are untreatable or simply part of the illness. Over time, we normalize symptoms so deeply that we stop mentioning them to our care teams. That internal monologue became so intertwined with my identity that I built my own systems to manage it, believing it could not be treated any other way.

At times, looking at my diagnosis profile feels like being reduced to a list of labels instead of being seen as a whole person. Living with multiple mental health diagnoses can feel daunting, but with effective dual diagnosis management, it is possible to find balance. I surround myself with people, both personally and medically, who support me in moments of crisis and wellness alike. While some symptoms require daily effort, a solid care plan built on self care, medication management, counseling or peer support, sleep hygiene, nutrition, and movement makes the weight more manageable.


Building a Personalized Care Plan (Because One Size Does Not Fit All)

Managing comorbid mental health conditions requires an intentional and personalized approach. One of the most important steps is working with a mental health care team to develop an integrated plan that treats the full picture rather than focusing on a single diagnosis.

My psychiatrist, Dr. A, has worked with me for three years to develop a treatment plan that reflects my individual needs. Alongside medication management, I engage in therapy that addresses my full experience. I have participated in Cognitive Behavioral Therapy and more recently trauma focused care for Post Traumatic Stress Disorder.

It is essential to work with providers who see beyond the loudest symptoms. Collaborative care can be the difference between long term stability and repeated relapse. You are not your symptoms and you are not your diagnosis, but you do deserve a care plan that reflects the complexity of your lived experience.


Daily Strategies to Stay Grounded with Multiple Diagnoses

Over time, I have learned that structure, routine, and healthy habits are essential when managing multiple diagnoses. The strategies I rely on are foundational to my emotional stability and mental wellness.

I build routines that allow space for both high and low energy days. On low energy days, I practice self compassion. On high energy days, I channel that energy into structured and intentional action. During my long term stay at Ontario Shores Centre for Mental Health Sciences, I learned how to track moods, triggers, and symptoms across diagnoses to identify patterns and shifts.

Because I tend to overschedule during elevated moods, I now practice gentle scheduling, daily self check ins that I call temperature checks, and a one thing at a time approach to tasks. These strategies help me remain grounded without becoming overwhelmed.

Self care for complex mental health goes beyond clinical tools. Meditation, breathing exercises, nourishing food choices, and daily movement are essential pillars of healing. Self care is not optional when managing multiple diagnoses. It is a core component of recovery and emotional regulation. I encourage anyone on this journey to speak with their care team about building self care practices that support their unique needs.


Final Thought: You Are More Than the Sum of Your Diagnoses

Receiving multiple diagnoses was not a life sentence. It was a revelation. What frightened me most was not the diagnoses themselves, but the years spent in uncertainty, fearing I would never understand my own mind.

What once felt confusing or broken now feels whole. Seeing the full picture of my mental health has given me clarity and hope. Managing my conditions together has allowed me to reclaim the agency I once lost by attributing every challenge to Bipolar disorder alone.

Bipolar once felt like a catch all explanation for symptoms I could not name. Through self advocacy, psychoeducation, and honest reflection, I discovered a unique symptom profile that extended beyond that initial diagnosis. I am more than the sum of my diagnoses, and so are you. When symptoms do not add up, seeking understanding is an act of courage. Fear lives in the unknown. Healing begins when we are willing to face the truth with compassion.

To my readers: 

What does it mean for you to be seen in all your complexity? And how can you begin showing yourself that same depth of understanding and care?

Saturday, December 13, 2025

More Than One Battle: Living with Bipolar Disorder and Substance Use Disorder | Being Diagnosed with Multiple Disorders Series - Part 1

 

More Than One Battle: Living with Bipolar Disorder and Substance Use Disorder

Being Diagnosed with Multiple Disorders Series - Part 1

Thursday, November 20, 2025

When the Battle Ends, Baseline Begins | My Jouney Back to Baseline - Part 5

 

When the Battle Ends, Baseline Begins

My Journey Back to Baseline Part 5

It has been a week since my follow-up appointment with Dr. A. Although I had convinced him to let me heal at home, I knew he had reservations about whether I could manage recovery on my own. He seemed pleasantly surprised when I walked into his office last week with Grama Judie by my side, calm and steady, ready to tell him I felt like myself again.

After a few questions about sleep hygiene and impulsivity, even he could see that his patient was on the mend. He told me how proud he was of my progress and recommended I stay on the new sleep medication a little longer until my circadian rhythm was stable. I agreed, admitting that sleep, more than impulsivity, had been my biggest challenge this time.

I was finally out of the woods. It had been a hard fought battle, but I was back to my baseline. For the first time in nearly twenty years of living with bipolar disorder, I felt like I was in control of my mental health, like I was in the driver's seat on my journey toward long term recovery.

Yet even when the battle ends and baseline begins, uncertainty lingers. Each episode, whether hypomania, mania, or psychosis, teaches me something new about who I am and what I am capable of. This most recent episode reminded me of my strength, resilience, and determination. I am a fighter. And with the support of my care team and family, I now know I can meet my mental health goals.

Choosing Healing on My Own Terms

It would have been easier to accept Dr. A's initial recommendation for hospitalization. But something in me knew I needed to try a different path. Healing at home was a risk, yes, but it was a risk worth taking for the sake of my autonomy, my future, and my dreams.

Since my diagnosis, I have often felt powerless, like I was living a life dictated by my illness rather than by choice. Every episode in the past left me feeling like I was slipping further away from myself. But this time, I fought to reclaim control. I chose to believe that recovery could look different, that healing could happen beyond hospital walls.

The Blessing of Baseline

Today, I carry a renewed sense of hope. The challenges that come with bipolar disorder, the highs, lows, impulsivity, and instability, are still part of my life, but they no longer define it. My approach has changed. I now face each cycle with wisdom, patience, and compassion. I have gained a deeper understanding of how this illness operates within me, and I am equipped with tools, structure, and support to face it head on.

I am not alone on this journey. My medical care team, my family, and my support network stand beside me, ready to help me weather whatever storms may come. When the next battle arrives, I will be ready, with faith, awareness, and the knowledge that every struggle brings growth.

Because with every battle comes a blessing, the blessing of baseline, the calm after the storm, and the start of something new.

Thursday, November 13, 2025

No Rain, No Flowers - My Pink Sweatshirt

 

No Rain, No Flowers - My Pink Sweatshirt

I sit in my big red writing chair as rain pours down on a dark, gloomy Thursday in November. Outside my window, I watch the English-style garden in front of my home. My neighbour planted wildflowers there earlier this summer. Although I love gardening, travel kept me too busy to help nurture the little patch of earth that now bursts with colour. Each morning, I’m surprised to see those flowers still standing tall. Fall is nearly over, winter is on its way, yet our garden remains vibrant. Their resilience mirrors the unseasonable rain and rare bursts of autumn sunshine that kept them alive.

Watching the flowers, I’m reminded of a pink sweatshirt I bought a year ago at the Ontario Shores thrift shop during my stay in the psychiatric unit. It reads, “No Rain, No Flowers.” Literally, the phrase fits, our garden owes its beauty to the rain. But as I sat there, I wondered what if the same idea applied to life?

Perhaps it means that the storms we face, the pain, loss, trauma, and the lows that test our strength, are also what help us bloom. The rain becomes the challenge that makes growth possible. The dark days we fight through prepare us for moments of joy and clarity. Healing, like growth, begins in the storm.

When our personal “flowers” finally bloom, they stand as proof of our resilience. If we are the flowers, strong yet fragile, then life itself is the rain. It’s natural to run for cover when the storm hits, but what if instead we stood in it? What if we let it wash away what no longer serves us, cleansing us for what comes next? Avoiding the rainfall only delays healing. Facing it invites transformation.

Flowers, like people, bend under pressure but rise again when the sun returns. The rain may weigh us down, but the warmth that follows restores us. Just as petals lift toward the light after the storm, so do we when we allow pain to teach us rather than define us.

In life, the rain will always come first. Heartbreak, grief, fear, and disappointment will pour down at times, testing our resolve. But after every storm, the sun reappears. Our tears dry. And with patience, we grow back stronger, blooming into the version of ourselves we were always meant to be.

No rain, no flowers. No pain, no healing. No struggle, no growth.

Thursday, November 6, 2025

Recovery, Remission and Redemption | My Journey Back To Baseline - Part 4

 

Recovery, Remission and Redemption

My Journey Back To Baseline Part 4

I have learned a great deal in my two years of remission. I have continued outpatient treatment and I connect with Dr. A regularly for check-ins, medication management, and mental health emergencies. I built structure, routine, and healthy habits that support my emotional wellness. I have managed my medication collaboratively with Dr. A to ensure that I am on the therapeutic combination most likely to prevent bipolar relapse. I have been sober for almost two years, which has been one of the most important factors in stabilizing and protecting my baseline. I have also taken intentional steps to address trauma through psychotherapy. I am pursuing my passions through writing, blogging, and public speaking. I have secured stable housing with the help of my support team of family and friends.

For the first time since my Bipolar I disorder diagnosis in 2006, I was able to identify the trigger that set off this most recent hypomanic episode: excessive travel, exhaustion, and burnout. In the past, episodes escalated before I had any awareness. I would end up in the emergency room where the episode was often misdiagnosed as drug-induced psychosis. I would be admitted to the Psychiatric Intensive Care Unit (PICU) as an involuntary patient, experience isolation and restraints, and spend no less than two months hospitalized. I would be medicated heavily and discharged quickly, with little understanding of how to maintain my mental health outside the hospital or prevent the same cycle from happening again.

Fast forward to today. Through psychoeducation, trauma work, accountability, and deep self-awareness, I can now recognize triggers for both the highs and the lows of my mood disorder. I knew what was happening in my mind, and I sought help before the episode escalated into mania or psychosis. Over the last three years, I earned Dr. A’s respect through transparency and honesty in our appointments.

So when I arrived with an unconventional request to heal at home rather than in a clinical setting, he took a risk. He trusted my insight and believed in the work I had done to understand my illness. Dr. A has been more than a psychiatrist. He has acted as a collaborator in my healing. We do not always agree, but our relationship is grounded in mutual respect. That respect allows me to have agency over my mental health, something many people living with severe mental illness do not experience.

During the first week of healing at home, I felt like a newborn. My days consisted of showering, eating, sleeping, and sitting outside on my porch for sun and fresh air. I checked in with my support team, especially Grama Judie. I listened to audiobooks, colored, and played music to soothe the noise in my mind. When the doubt became too loud, I turned the music up and danced until I remembered that my body, too, could be a place of healing. I sang loudly, breathed deeply, and held space for myself in ways that were both simple and sacred.

Sleep did not come easy. I feared that at any moment this healing-at-home path could shift, leading me back into hospitalization. I was grateful, but I was also afraid that three weeks would pass and I would still be hypomanic. Mania felt close, like something waiting behind a door. Psychosis felt like a possibility. The medication could only carry me part of the way. The rest required trust, discipline, and faith.

I was not only chasing baseline. I was chasing redemption. If I could return to baseline on my own terms, I would regain my autonomy. I would show the people in my life that my illness did not define me or diminish me. I would show myself that I was capable of self-correction and emotional regulation. I would challenge the belief that hospitalization was the only path to stabilization.

If I returned to baseline with the support of my healthcare team, medication, structure, routine, healthy habits, my family, my friends, and my own relentless commitment to choosing myself each day, then maybe the question would change. Maybe I would not have to chase baseline anymore. Maybe I could begin chasing my dreams.

I would not receive the answer to that question until my follow-up appointment with Dr. A, where he would determine whether hospitalization was still necessary or whether I had found my way back to stability, remission, and the possibility of redemption.

Thursday, October 30, 2025

Recovery Challenges and Family Dynamics | My Journey Back to Baseline - Part 3

 

Recovery Challenges and Family Dynamics

My Journey Back to Baseline - Part 3

The weeks that followed my emergency appointment with Dr. A required patience, discipline, and a level of self-trust I had not fully practiced before. I began taking the new antipsychotic as prescribed, accepting that weight gain might be a side effect. I parked Betty White, my Toyota Camry, and committed to staying grounded. I replaced my 5 a.m. gym routine with quiet therapeutic walks. I slowed down. I focused on self-care. I practiced self-compassion, reminding myself that letting go of the rigid daily to-do lists was not failure but healing.

Staying out of "family business" was the most difficult term of my recovery. My mother was diagnosed with dementia in May 2024, and I became her primary caregiver. That role is not just practical but emotional. It means managing appointments, daily check-ins, and being her grounding presence. I also have two nieces who are used to having me close. My family loves me deeply, but even after twenty years of living with Bipolar I disorder, understanding the illness is not the same as living with it. The emotional toll of their worry has often pushed me to pretend I was okay before I was.

Dr. A made it clear that connection, concern, and caretaking could all serve as stress triggers during this stage. It was painful to accept that the people I love could also destabilize me. In the past, I rushed my recovery to reassure them that I was "back," placing their comfort above my wellness. This time, I chose differently. I chose to put my oxygen mask on first. I chose to heal at my own pace and in my own way.

Telling my family that I needed space was not easy. Some understood immediately and checked in gently through text. Others, guided by fear and memories of past episodes, urged me to go to the hospital and "let the doctors handle it." I knew I was taking the harder path. The unfamiliar path. The one that made everyone, including me, uncomfortable. I felt scared and hopeful at the same time. I felt relief.

And I was not alone.

My support team held steady. They believed in my ability to navigate this process at home. They saw my strength, resilience, and insight even on the days I struggled to see it myself. Their encouragement helped me stay grounded, stay committed, and stay open to healing.

The journey of a thousand miles begins with a single step. I finally believed I could take that step without surrendering to the idea that hospitalization was the only road back to stability. I began to rewrite what recovery could look like for me.

Not rushed.
Not reactive.
Not shaped by fear.
But steady, intentional, and mine.

Thursday, October 23, 2025

You Don’t Know What You Got Til It’s Gone | My Journey Back to Baseline - Part 2

You Don’t Know What You Got Til It’s Gone

My Journey Back to Baseline - Part 2

As I sat in the waiting room of Dr. A’s office at the hospital I once called home, I was terrified. To my right was the door to the inpatient unit, and I knew that after this difficult conversation, I might be returning there once again. Grama Judie sat to my left, quietly holding space beside me. I was in the midst of a hypomanic episode and I knew it, Grama Judie knew it, and soon my doctor would too. I sat in silence, rehearsing what I could possibly say to avoid being admitted behind the reinforced steel doors of the psychiatric unit I feared more than anything. When I looked up from my thoughts, Dr. A appeared, summoning us into his office.

My psychiatrist is a well-dressed, well-spoken Nigerian man who always seems in motion but somehow manages to slow down and give my care his full attention. We have worked together for almost three years, during which he has seen me in hypomania, mania, and psychosis. His decision to refer me to long-term care at a local psychiatric hospital once saved my life. It gave me the space to rebuild, rediscover hope, and find a healthier way to manage my bipolar disorder. If baseline represented recovery, this latest episode felt like relapse. I could only hope that my unconventional doctor would hear and support my unconventional idea for how to find my way back to baseline once again.

Dr. A began our appointment as he always does.

“What’s going on with you, Onika?”

That simple question broke me open.

“Doc, I’m having a hypomanic episode. I’m averaging one to two hours of sleep a night. My thoughts are racing. I spent my rent money impulsively. I’ve blown through my inheritance. I’m overwhelmed by family responsibilities. I’m hypersexual, though I haven’t acted on it. My appetite is gone. I have endless energy, and I can’t regulate my emotions. I keep crying without knowing why.”

I told him everything.

He listened, then spoke with honesty and care. He reminded me that he had warned me about overextending myself. The constant travel, the time zone changes, the lack of rest—all of it had pushed me past my limit. He had hoped I would slow down after my trip to Guyana last December, but instead, I took on more. A vacation in the Bahamas, followed by a 12-hour family road trip to New York City, then another flight soon after. He explained that for someone living with bipolar disorder, these disruptions can be dangerous. I had burned out my brain, and now it was no longer a question of if hypomania would escalate to mania, but when. His recommendation was voluntary hospitalization for two to three weeks to regulate my sleep.

In that moment, a lyric from Joni Mitchell’s Big Yellow Taxi came to mind: “You don’t know what you’ve got till it’s gone.” My baseline was gone, and with it, my freedom felt threatened. I knew what hospitalization meant. They would take my clothes, my jewelry, and my phone. I might end up in the Psychiatric Intensive Care Unit, where nurses could strap me to a bed or place me in isolation. I wouldn’t eat what or when I wanted. I couldn’t call my loved ones or return home when I wished. I would become a name on a whiteboard, a patient with no autonomy.

The weight of his recommendation hit me hard, and I made a decision in that moment: I was not going to be hospitalized. I believed there was another way to recover, another path to remission, and I was determined to prove it.

I made my pitch. I told Dr. A that being admitted to a psychiatric ward would set back my progress. The environment there was not conducive to healing. There was little trust, little communication, and too much control. I proposed an alternative, to heal at home. I promised to take the prescribed medications despite the side effects, to rest, to avoid driving, to reduce family involvement, and to listen to my body’s signals.

Healing on my own terms had helped me maintain stability for nearly two years, and I was desperate to try again. Something in my plea must have resonated because I noticed his expression soften. His eyes, behind his bright blue glasses, seemed to smile. Victory.

Dr. A agreed. He said I had shown great insight and accountability by coming to him before things worsened. He told me he was proud of my honesty and my commitment to wellness. Because our relationship was built on mutual trust, he would allow me to try recovery at home, under strict conditions: 

  • Take the new medications exactly as prescribed and prioritize sleep
  • No driving for three weeks
  • Skip the 5 a.m. gym workouts and stick to light walks in the neighbourhood
  • Complete all required blood work

  • Most importantly: stay out of family business

I left the office with Grama Judie by my side, clutching a new prescription and a fragile sense of relief. I had convinced my doctor to believe in me, to trust that I could find my way back to baseline outside hospital walls. His faith felt like a gift, and I was determined not to waste it.

As we walked toward my car, Grama turned to me and said with a grin, “If I think this isn’t working, I’m calling Dr. A and forming the hell out of you!”

I kissed her cheek, laughing through tears. My eighty-year-old grandmother, my advocate, my friend, and my fiercest protector had once again saved me from myself. Together, we walked toward my uncertain future, one built on hope, faith, and the belief that I could find my way home to baseline once again.

Thursday, October 16, 2025

Holding It All Together: Caregiving, Grief, and the Fight for Stability | My Journey Back to Baseline - Part 1

Holding It All Together: Caregiving, Grief, and the Fight for Stability

My Journey Back to Baseline - Part 1

My journey back to baseline has never felt harder than it has in recent weeks. Over the past 20 years of living with this complex and unpredictable illness, I have experienced countless hypomanic, manic, and psychotic episodes. I have been hospitalized for extended periods while doctors worked to guide me through cycles of mood swings, insomnia, and emotional instability. I have always known that psychosis lurks somewhere between my present and my future, an inevitable part of my bipolar cycle on the road to recovery.

But something has changed, or maybe I have. Since my last severe manic episode, which led to a four-month stay in a psychiatric hospital, I have learned that the journey back to baseline does not have to mean enduring chaos before finding peace. With the right support, determination, and self-awareness, healing can look and feel different.

The summer of 2025 was a whirlwind. I traveled, took on new projects, became a caregiver, and published three blogs a week so readers could walk beside me on this wellness journey. My adventures took me to both new and familiar places, but I failed to notice how exhausted I had become. I convinced myself that small adjustments to my sleep routine would keep me stable and moving forward. What I did not recognize was that my constant motion was not just ambition, it was avoidance. I was running far and fast, refusing to think about what I was really trying to escape.

In May 2024, my mother was diagnosed with dementia, and in the months since, it has progressed. Though she remains physically strong, her memory has begun to fade. Three other relatives in my family are also living with dementia, all at different stages of their journeys. It has been hard for us all because we are a close-knit family, bound by love and history. My Gran Gran Alvira used to say, “Family sticks together because when one of us bleeds, we all bleed.” Lately, I feel like I am hemorrhaging under the weight of my mother’s illness.

As the eldest daughter of two, I have taken on the role of her primary caregiver. My days are filled with doctor’s appointments, daily check-ins, travel companionship, financial management, and personal care. I needed to breathe, so I took a month off. But when I came home, the responsibilities were still waiting for me.

Then came another loss. In November 2024, I lost my sister-cousin to cancer. I have not allowed myself to truly grieve. The only time I let the pain in is during my weekly visits to the lakeshore, where we used to walk together. I go alone because I am afraid that if my family sees me fall apart, they will start whispering worries about my mental stability, predicting relapse before it happens. I know their fear is wrapped in love, but it does not help me process the hole that loss has left in my heart. I did not want to return to old patterns of coping with grief such as substance use or self-destructive behaviour, so instead, I ran again.

By the end of summer, it was time to face what I had been avoiding. My bipolar cycle had veered from my usual baseline into rapid cycling, swinging between highs and lows. By mid-September, sleep had become nearly impossible. I could not regulate my emotions. I was overspending, overworking, and overextending myself, trying to be everything to everyone: caregiver, student, daughter, granddaughter, auntie, listener, writer, and speaker.

It was time for an emergency visit to Dr. A, my psychiatrist.


Monday, September 29, 2025

One Year of Onika L. Dainty: Over 43,000 Views, Real Stories, Real Growth

 

One Year of Onika L. Dainty: Over 43,000 Views, Real Stories, Real Growth

The Post I’ve Dreamed of Writing

One year ago, I pressed publish on my first blog post with a mix of fear and hope. Today, I sit here in awe: over 43,000 views in 12 months. That number represents more than traffic. It means reach, resonance, and community.

This space was never about numbers, it was about honesty, about putting lived experience with bipolar disorder on the page and trusting that someone, somewhere, might feel less alone. Along the way, I’ve written through highs, lows, and all the in-between spaces of recovery.

The Personal Wins: Living the Dream of Writing

For years, I dreamed of being a writer. This blog made that dream real. Weekly practice gave me courage to tell the truth, even when it felt risky. Vulnerability became a ritual, not a performance, and self-trust slowly replaced self-doubt.

Every time I published, even on the toughest days, I met a truer version of myself. And in doing so, I also get to lead by example, showing my two nieces that you can follow your dreams, even when the path is complicated by mental health struggles.

Readers’ Favourites: The Posts That Traveled Farthest

Some pieces traveled farther than I ever imagined:

  • Life Lessons Series - This ongoing series of reflections has become a hub of dialogue. Posts on validation, resilience, and self-love showed me that sharing “small” lessons can carry immense weight.

Together, these four pillars helped carry us to nearly 43K+ views—proof that honest, grounded stories matter.

The Professional Wins: From Blog to Real-World Impact

This blog also opened doors beyond the screen.
  • Speaking engagements: I’ll never forget the first time I stood on stage and saw people leaning in to hear lived experience framed as knowledge.
  • Course development: Partnering with a university to help shape curriculum affirmed the value of storytelling and empowered the next generation of social workers.
  • My own course (coming soon): A space where lived experience meets structured learning for women navigating mental health recovery.
  • Peer support at scale: From DMs to workshops, the ripple effect of one blog post has reached further than I could have imagined.

The Honest Lows: What Was Hard and How I Coped

It wasn’t all triumph. Creating while living with bipolar disorder meant navigating cycles, hospitalizations, and travel that disrupted consistency. Family duties and responsibilities demanded renegotiated boundaries. And sometimes, I had to pause projects or choose rest, learning that stepping back is also part of moving forward. 

You may have noticed that this past month, September, and also in May, my posts were limited. That is because I have been moving through bipolar depression and hypomania, and I chose care over output. I will share more about this in future posts.

My Support Team

I have often spoken about the importance of having a team around you, and mine has been incredible. A special thank you to Grama Judie for everything she has done for me, for being my advocate when I cannot be my own. And to my family, who have been on this journey with me and stayed by my side, you know who you are.

Sidebar: My Relief Kit

  • Journaling for grounding
  • Walks in nature
  • Music playlists for mood shifts
  • Phone calls with trusted supports
  • Sleep hygiene rituals

What I Learned About Myself in 365 Days

  1. I am both tender and capable.
  2. Vulnerability is a practice, not a personality.
  3. Consistency comes from systems and support, not willpower alone.
  4. My path is mine to honour, to pace gently, and to protect fiercely.
  5. Community multiplies courage.

What’s Next

The second year brings new commitments and possibilities:
  • More consistent blogging with a sustainable cadence.
  • Partnerships with local organizations and peer networks.
  • Exploring a not-for-profit initiative to support those navigating housing, mental health, and women’s wellness.
  • Courses and workshops that translate lived experience into structured tools for healing and resilience.

Gratitude Roll

To every reader, commenter, collaborator, and quiet supporter: thank you. Thank you for trusting me with your stories, and for letting my words walk alongside yours.

I’d love to hear from you: Which post spoke to you most? Explore my previous posts and the Life Lessons Series and let me know.

If a post has helped you, please share it with someone who needs lived-experience hope today. Together, we can keep this community growing.